Some of my earliest memories were canvasing and organizing. I was raised to speak up for what I believe in, and those lessons came to a head when I was diagnosed with Type-One Diabetes. Initially, I felt like there was nothing I could do and I just had to accept my new reality of constant blood sugar testing, counting carbs, and troubleshooting 24/7. No one day is the same in the life of a diabetic. Those feelings quickly turned into action and since then, I have been involved with the Juvenile Diabetes Research Foundation (JDRF) for the past 10 years.
JDRF funds Type-One Diabetes (T1D) research, provides support, and an activist network for the T1D community. They also advocate for policies changes and improved therapies. I continue to work to provide support and education for newly diagnosed patients. I have assisted with and spoken at various fundraisers over the years. I was selected to lead group of 50 young advocates, created new content for the JDRF website, and am involved with the organization’s event programming. I also work to build educational and engagement programs so that JDRF’s important work can reach more young people across the country. In 2019, I also was selected as one of two delegates from New York to represent JDRF on Capitol Hill. I met for four days with federal legislators to advocate for affordable insulin pricing and research funding. See some of my work in action below.
I am currently working on expanding a Tween T1D writing group to provide a safe and constructive space to share experiences with other T1D children.
I believe in taking action.
Speaking at the 47th JDRF Annual Promise Ball in front of 500+ people
With Mayor Michael Bloomberg at the 47th JDRF Annual Promise Ball
Advocating with JDRF as a Children's Congress representative on Capitol Hill
Getting to meet President Biden in Washington DC
Speaking at the second annual "Comedy for a Cure" fundraiser
Advocating for the Affordable Insulin Act with Senator Schumer
Speaking at the JDRF Children's Conference in 2019
With Derek Rapp, the CEO of JDRF at a fundraiser in 2017 where I spoke about living with T1D
At the NASDAQ ringing the opening bell with current JDRF President Aaron J. Kowalski
JDRF on the NASDAQ billboard!
With the JDRF Children's Congress visiting my congresswoman in 2019